Lorenzo's First Birthday-- My very Hungry Caterpillar

Lorenzo 1 year old :)

12 months later... here is the equipment...

Almost a year....

Is been almost a year and I'm still feeling under water, extremely overwhelmed.... testing continues, therapy continues, and my days are getting longer and longer... I just find happiness these days in my children's smiles...

Is a New Year 2012!!

He sleeps with mommy like a baby koala

Yes is 2012 and we are a month away from Lorenzo's First Birthday... I must confess I'm heartbroken to still see my baby so delay and in so many ways feel so alone, i watch all the little babies that were born the same time as lorenzo and they are so "normal" and my baby is not... my mom left to go back home and i miss her dearly... as i write this i realize we are out of juice and milk and i can't go to the store because i don't have 8 arms, Lorenzo doesn't sit so i can put him in the cart, i can't hold him with one arm so i can't hold a basket, and i still don't have a stroller that will work for him so my mom here as an pair of hands was great....

I'm taking a mental break for a few days to rest, I'm exhausted... For now Lorenzo continues to work hard with Occupational Therapy and Physical Therapy... a few days back i had a very important Appointment and went back into the big pool of questions with no answers... as February approaches, so does the time Lorenzo will need a Muscle Biopsy, Swallow testing, Spinal tap & many more... I must come back from this trip rested and focus, because is going to be long journey ahead... My days are endless and some days i don't even seem to remember if i even put my car on parking... i don't sleep and i seem to feel like i'm under water half of the day... but i continue to do the best i can and continue to be so impress and blessed with the close family members and friends that had step up to help me in everyway possible.... so here we go 2012.... let's do this...