Lorenzo's First Birthday-- My very Hungry Caterpillar

Lorenzo 1 year old :)

12 months later... here is the equipment...

Almost a year....

Is been almost a year and I'm still feeling under water, extremely overwhelmed.... testing continues, therapy continues, and my days are getting longer and longer... I just find happiness these days in my children's smiles...

Is a New Year 2012!!

He sleeps with mommy like a baby koala

Yes is 2012 and we are a month away from Lorenzo's First Birthday... I must confess I'm heartbroken to still see my baby so delay and in so many ways feel so alone, i watch all the little babies that were born the same time as lorenzo and they are so "normal" and my baby is not... my mom left to go back home and i miss her dearly... as i write this i realize we are out of juice and milk and i can't go to the store because i don't have 8 arms, Lorenzo doesn't sit so i can put him in the cart, i can't hold him with one arm so i can't hold a basket, and i still don't have a stroller that will work for him so my mom here as an pair of hands was great....

I'm taking a mental break for a few days to rest, I'm exhausted... For now Lorenzo continues to work hard with Occupational Therapy and Physical Therapy... a few days back i had a very important Appointment and went back into the big pool of questions with no answers... as February approaches, so does the time Lorenzo will need a Muscle Biopsy, Swallow testing, Spinal tap & many more... I must come back from this trip rested and focus, because is going to be long journey ahead... My days are endless and some days i don't even seem to remember if i even put my car on parking... i don't sleep and i seem to feel like i'm under water half of the day... but i continue to do the best i can and continue to be so impress and blessed with the close family members and friends that had step up to help me in everyway possible.... so here we go 2012.... let's do this...

Holiday Season

Is Lorenzo's first christmas.... I'm excited and yes a bit sad, is been a very hard few weeks with so much going on... I'm blessed to have my mom's help and presence here in OKC.. can't even imagine how sad i will be when she leaves... OT & PT are great, The children's Center is really a wonderful place to be... but is so overwhelming and my glass is more than full emotionally, soon my break will arrive.... for now, i will keep on swimming...

Lorenzo's Busy schedule..

Monday-- Pediatrician Checkup

Tuesday-- Occupational Therapy

Wednesday-- Sooner Start Early Intervention

Thursday-- Physical Therapy & Eye Doctor

Friday-- Genetics Appointment Round three....

Any questions??? In between i'm still the mom to three wonderful kids and i should breath and feed myself... Ready set go

Early Intervention

After my so waited meeting with Sooner Start, after two hours of talking and 2 physical therapist doing all type of test on Lorenzo, the good news they don't think his case of Hypotonia is as severe as other cases, he can roll over, hold objects in both hands, smile, lift head & body when in the ground, eat, drink from cup, and when he is in the water will attempt the movements to crawl... & started saying once in a while Mama... with all that said, my journey ahead in the next 3 years ahead is going to be hard, but somehow I know treating my family at somehow "normal" will guide me in the road ahead... I'm focusing on finding special bath chair, and carseat for Lorenzo right now and working very hard probably the hardest i ever worked on keeping my kids in the right track at school, and dedicating each breath to them and getting lorenzo moving... I think the day i see him take his first steps i could breath..... The weeks ahead touring Bethany Children Center, Special Care Daycare in OKC, and J.D. Macarthy Center in Norman....

By keeping my sanity and bring the extra cash, found myself a JOB... lets see how that goes...

I'm beyond excitement for my mom to be here in the next few weeks (I miss her dearly), and the holidays ahead... i want to remember the good times ahead, and focus on what i have in my hands now, and my reality.. better than wishing and hoping for what i don't have right now... Sometimes you need life to slap you a few times to see what is important... Trust me I been slapped a few times now.... Good day everyone!!